Tuesday, June 14, 2016

Being Strong and Courageous - After Chemo Round #1

It's hard to believe it's been one-month since my double mastectomy and one-week since my first round of chemotherapy. Although we have have had some ups and some downs - at the end of the day, I go to sleep with a smile on my face and thank God for all the blessings He continues to give to our family.

I'm happy to say that my Red Breast Syndrome has cleared up.  More research and patient education materials need to be explored regarding this rare phenomenon. Basically, my body had an allergic reaction to the cadaver cartilage they placed in my chest wall.

Last Monday, I had another surgical procedure to place a port on the right side of my chest (it is threaded into my superior vena cava) and will be used to give my chemotherapy, draw blood, etc. for all of my future treatments. 

My first chemotherapy session (out of 6 sessions) was a success! I quickly learned that steroids cause me to act like a squirrel on CRACK!! After coming down from my "high", each day I had a little less energy.  Saturday, I hit rock bottom, it was as if I had an out-of-body experience.  I had never passed out before, but I think I probably came pretty close on Saturday. Later in the day, I had severe nausea and little energy.  Since then, my stomach has experienced constant diarrhea, back pain, and scalp tingling - where I can only imagine that my hair follicles are dying at the scalp.

As for now, I know my immune system is compromised - therefore, when I see you in the community, I will need to give you air hugs.  The smallest infection could put me in the hospital.

Abby left this morning, with her horse trainer, to attend a competition with her pony.  She is so excited to take on new challenges and I'm excited to see her excel in a sport she loves.  The twins leave next week for church camp and although I know that I will miss them terribly, I have thankful they will be able to make great memories with friends.  Nathan has his endocrinology appointment today - cross your fingers that everything goes well!